Thank you so much for the sweet prayers from all of you after my last post on Riverson’s HSP. I’m really happy to report that he’s doing much better.
How Is He Doing Now?
We’re not totally back to normal, but we’ve come a long way from this.
It’s not without the help of these.
When I wrote that first post about HSP, I was scared to share a single one of the pictures I’ve taken since this all started. I don’t know why. I guess I just didn’t want people seeing him like that.
That thought changed when someone contacted me after reading my post online and thanked me for sharing pictures because there were not many to be found online. She’s right.
She sent me pictures of what it looks like for her daughter and it definitely looks similar to what we’ve been dealing with. It got me to thinking that as moms, when something is wrong, and we are unsure, we turn to the internet. I know they say it’s bad to google about medical issues, but we all do it. I’ve been researching the internet like crazy trying to learn as much as I can about HSP.
I’m hoping these pictures might help another parent when they, too, start scouring the internet for more HSP information.
What Do I Think Caused This?
When we were in the ER on December 23rd, the doctor asked me if he had been sick within the past two or three weeks with a cold or anything similar. I said “no” but then remembered he DID have a strangely high fever 2 weeks before that lasted less than 24 hours.
After putting some pieces together and with a big help from my mom, who was also avidly researching, we made the connection to a vaccine.
Deep in my heart, I really think this HSP is a response to the chicken pox vaccine (varicella) Riverson got on December 13th.
We noticed his spots pop up on December 22nd and that puts it less than 10 days out from the vaccine. My step-dad’s cancer doctor, who looked at pictures of Riverson, agreed with us and said if there was to be a reaction, it would happen within 7-10 days.
I’m no doctor and have no medical experience. This is just one mom’s guess after doing a lot of research.
I think I would have rather him have the chicken pox than this mess.
We are now a little over 2 weeks from the first sign of HSP popping up on Riverson’s body. This is what he looked like on Friday.
If I could just keep him from itching all of these spots, we’d be in good shape.
Fortunately, the swelling has gone down and he’s returned to his usual silly self.
A neighbor of ours came to the door the other day and saw Riverson. I could tell she was trying to act like it was no big deal, but she kept looking at him, out of concern for him. I had to explain everything we’ve been through so she knew a) she didn’t need to call CPS and b) it wasn’t contagious.
And that’s probably not the last time I’ll have to explain things to a stranger. I’m still debating on whether he will go to school on Tuesday or not. If so, he will be completely covered up.
To sum it all up, this has been a pretty awful experience and our family has been through the ringer.
Jeff and I are done. No other child in this family is allowed to get sick.
That is final.